Source: Lake Geneva Regional News

Boy’s disorder, injury too much

June 07, 2012

Dear W.C.,

The last few years have been extremely difficult.

First my son was diagnosed with a rare genetic disorder. He is 12-years-old years old and has been having symptoms for two years that no one could diagnose. We finally got the right diagnosis after being in and out of the hospital many times. We just adapted to the changes in our life from his disorder, then I got injured. I was helping my elderly mother with repairs around her house and injured my back when I fell off a ladder.

I was let go from my job due to the amount of days I missed from the pain from my back injury and caring for my son on the days he cannot make it to school. I do not have anyone to help me with his care. My son’s father no longer had any interest in his son once he found out he had a genetic disorder. He owes me over two years in child support and no one knows where he is.

I was doing fine without his help until this back injury. I have applied for disability but have not received any yet. I can barely pay for rent, utilities, and food. I had surgery on my back and it needs another month to heal. Hopefully, then I can get another job. In the meantime I am so scared and worried about how we are going to survive.

Suffering mom and son

Dear Readers,

Injuries and illness are a common cause of poverty in our country. One fall, an illness, or accident can change a whole families life. This mother and son both were struggling with painful disabilities.

I paid an unplanned visit to the mother during the day. I arrived at the address of a house that had been broken into several apartments.

The door was answered by a woman holding her back in obvious pain. After I introduced myself and showed identification I asked if she would be able to talk.

I offered to speak with her outside if she would be more comfortable. She admitted she would be more comfortable outside so I waited as she got a jacket and her keys. When she came outside I could see she was moving very slowly and carefully, also wincing as she negotiated the steps.

I asked about her back surgery. I asked if she was taking any medications and she said only ibuprofen as the stronger medications made her too drowsy to care for her son.

I asked about her son. She told me some more details about her sons disorder. His trips to the emergency room were much fewer now that she knew how to treat him at home.

The mother said she had to stay alert in order to give him the care he needed. I asked if she was getting enough rest, noting how tired she appeared.

The mother said she was unable to sleep due to the pain in her back. She also was woke up during the night sometimes by her son’s needs.

I asked the mother about their financial situation. I knew with all the medical bills, prescriptions for the son, and loss of her job they had to be struggling. The mother said they were behind in their rent and her car only had a few payments left that she was unable to pay. It was about to be repossessed. I had her show me the car and determined it was definitely worth saving with the small amount she owed to pay it off in full.

At that point she said it would be OK. to go inside, go over her bills and to show me her medical statements for her back surgery. After going over their budget I could see the mother would need to receive disability and/or a job to get by. I also could see she would not be able to go back to work full-time due to both her back and the care required by her son. When I mentioned the possibility of this she admitted how hard it had been to try and maintain a full-time job for as long as she had. She said her employer had been extremely patient with her sporadic absentees but it had started to affect his already failing business.

Just then a school bus arrived in front of the house and the mother got a big smile on her face when she said, “This is my sons bus. You can meet him too.”

After a moment a boy that looked much younger than 12 slowly got off the bus. I saw his face fill with happiness when he saw his Mom. After I was introduced to her son I could see something was wrong. The mother said she needed to tend to him. I had no idea how much loving care this mother was required to perform, all while nursing a back injury.

I watched as she helped him clear his lungs and gave him a breathing treatment. The son never complained and seemed to feel much better once the treatment was done. I knew this mother and son needed our assistance to get them through this difficult time.

I asked about her mother. She said she had a very loving relationship with her mother.

The son also added, “I love my Grandma.” I asked about the possibility of them moving in together. After a long conversation she agreed to ask her widowed mother if she would be interested in living together.

She told me her mom was the one that encouraged her to write a letter to The Time Is Now to Help. With that, she asked if I would go with them to her mother’s house to ask her the question. I agreed.

When it comes to financial struggles in this recession, more and more families are coming together to share expenses. There is no better way to do this than living together.

When we arrived at the grandmother/mothers small house I was greeted with a warm hug followed by being told how she never missed one of The Time Is Now to Help columns. When the daughter asked her mother about moving in together, the mother burst into tears, hugging her daughter and grandson, saying, “Yes, yes, yes.”

We sat down together and prepared a combined budget. I directed the mother for additional assistance with her son. We paid her last three car payments and helped with the utilities. I spoke with her landlord and he graciously allowed her out of her lease. Some volunteers helped her with her move.

After a few months I paid another visit. The mother told me about her great part-time job. Their budget was right on track. The three of them were very happy living together and a big help to each other as they all were living with disabilities. The grandmother/mother insisted on giving me another hug, which I gladly returned.

She had tears in her eyes as she said, “Thank you and God bless everyone from The Time Is Now to Help.”

Together we make our world a better place.

Health and happiness, God Bless Everyone, W.C./Sal

Please Help: Make checks payable to: The Time Is Now to Help, P.O. Box 70, Pell Lake, WI 53157. The Time Is Now to Help is a federally recognized 501(c)3 charitable organization licensed in the states of Wisconsin and Illinois. You will receive a tax deductible, itemized thank you receipt showing exactly what every penny of your donation provided for the poverty stricken.

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